Sunday, August 26, 2007

a discouraging weekend

oh well...i guess we all have 'em, but this weekend was a hard one with Henry. Not that he was doing anything other than normal, but it's just getting so frustrating watching him spend every free second of his time either stimming out on books or asking to use the computer - anything to avoid interaction with us. especially now that we understand what a form of "escape" it is and how he is doing these things to feel "ok" - why can't he feel ok with us??

in terms of activities, this weekend wasn't so bad. Sat. morning i took Henry to get some paint for the bathroom renovation. i thought he would like to see how they blend the colors and mix the can...unfortunately it wasn't as visible as i'd hoped it'd be. however, we did use the outing for a lot of RDI-like activities - experience sharing, he helped me carry the paint can (we did it together) etc. And I involved him in all the regular weekend activities like laundry and dishes etc. We even played in the pool a bit outside in the front yard and did a game with pouring.

however, i just get so frustrated sometimes. it seems like we're working so hard with him and just making these baby steps. at times, aaron and i just want to box up all his books and unplug the computer and eliminate all his ability to stim and avoid us. but i know that's not only cruel b/c he needs these things to feel ok (for now) but also, he would probably just find some other more inappropriate thing to get lost in. every time i go down this track i feel bad, b/c as hard as it is for us, it's probably about 10x harder for Henry. i mean, it took the poor kid about 15 minutes to try to tell me he wanted to go to the library on friday...and he was so happy when i finally understood him - it literally made his day.

so, sunday i spent most of the day painting, which i couldn't really involve Henry in, so Aaron took the lead for most of the day. we did a few small things together, like walk down to grandmas and drive to aunt shanons together - but not much for formal activities, i was just not into it. anyway, i'm sure tomorrow will bring a new day and a better attitude....and i hope that soon we will see those changes in Henry that will help us (and him) stay motivated to work hard and know that we are doing the right thing here.

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